Welcome to The Aneurysm and AVM Foundation web site!

Dedicated to bettering the lives, support networks, and medical care of those affected by aneurysm and other types of vascular malformation of the brain.

Click Here to make a donation online to The Aneurysm and AVM Foundation to help further our efforts with research, education and support for brain aneurysms, arterviovenous and cavernous malformations

TAAF Updates

3 Ways to #GivingTuesday
#Giving Tuesday is about ordinary people coming together to do extraordinary things, and we've made it super easy. Click to SHOW , VOLUNTEER , OR DONATE . When you're done, share our 3 Ways to #GivingTuesday video to get your friends and family involved.


 

AVM Information Panel with Co-hosts Michael Lawton, MD & Helen Kim, MPH, PhD
This is an amazing opportunity to hear experts in the rare disease field talk about the work they love and to pick their brains about the in's and out's of AVM and other vascular malformations. In addition to our co-hosts, you'll learn from panelists Dr. Wade Smith, Dr. Nerissa Ko, and the rare disease advocacy group The EveryLife Foundation. Whether you're a caregiver, survivor, family member or medical professional, we hope you'll join us, RSVP via Facebook or email Dina Chon directly at dina@taafonline.org.


 

October was AVM Awareness Month
As a rare disease, AVM’s affect 18/100,000 in the US alone and bring with them a whole host of complications that aneurysm patients never face.If you missed our tribute video, check it out: It's Only Rare Until It Happens to You:The Face of AVM Awareness

Let the world know, it’s only rare until it happens to you! We are #UnitedAndRare.

 September was Brain Aneurysm Awareness Month  

Participation in our tribute video last month was amazing.  Missed it or just wanna watch it again? Check out The Face of Brain Aneurysm Awareness .

United we care, so #UnitedWeShare during Brain Aneurysm Awareness Month!

 

11th Annual Aneurysm and AVM Awareness Walk

Be part of the celebration at your 11th Annual Aneurysm and AVM Awareness Walk happening Sunday, May 15, Crissy Field in San Francisco!

Registration is open, so click here to WALK WITH US.  Can’t make it to San Francisco? Raise awareness and make an impact in your own community! Click here  to WALK ON YOUR OWN.

On your mark, get set, WALK!

 

10th Annual Aneurysm and AVM Awareness Walk

We went big for the 10th Anniversary of our Annual Aneurysm and AVM Awareness Walk Sunday, May 3rd.  Crissy Field in San Francisco was packed, 100's more participated in our Walk On Your Own (WOYO) initiative, and donations came in from over 9 different countries.  Congratulations to all who supported, came out, gave and cheered us on.  You spread awareness far and wide gathering the attention of the city and beyond! 

In fact, we were featured in The San Francisco Chronicle and honored by Mayor Edward Lee himself. Read more about that here

 

The Walk may be over, but you can still make a donation to participants or visit our photographer's page to view the gallery, download high-res photos, or purchase prints.

 

Thanks to the support of tireless volunteers, an outstanding board and staff, and most importantly...

 ...our gigantic family of walkers.

 

 

 The William L. Young Endowment Fund

Dr. William L. YoungWilliam L. Young, the Vice Chair for Research in the Department of Anesthesia and Perioperative Care at UCSF, founder and director of the Center for Cerebrovascular Research, a member of TAAF’s Board of Directors, and a pioneer of cerebrovascular research passed away on August 1, 2013. Dr. Young’s career was largely devoted to the care of patients with vascular malformations and the study of AVMs. He built an extensive research portfolio, including TAAF's first grant to study gene expression in AVM patients.

 

TAAF is proud to maintain Dr. Young's legacy through the William L. Young Endowment Fund to recognize, honor, and promote excellence in research.

More information about the award for excellence in research coming soon.

To contribute the fund, click "DONATE" above and select The William L. Young Endowment Fund from the designation menu.

 

Shop at AmazonSmile and Support TAAF!

Click here to shop AmazonSmile to support TAAF!Do your shopping at AmazonSmile and Amazon will donate a percentage of your purchases to The Aneurysm and AVM Foundation!

Visit AmazonSmile, select TAAF as your charity of choice (we'll be listed under our legal name, "The Aneurysm Foundation"), and shop as usual! Amazon will take care of the rest!

You can also click here to go directly to AmazonSmile and start shopping to support TAAF!

 Grassroots Fundraising and Awareness Events

Grassroots events are fundraising and awareness events organized and hosted by people like you! Thank you to our TAAF supporters!

If you are interested in hosting a walk, fundraiser, or awareness event in your community, e-mail us at info@TAAFonline.org. We're here to help!

Dom's "School's Out" Create-N-Paint

"They (the children) did such an AMAZING job."

Thursday, November 5, 2015 children from Manalapan, NJ came out to honor their friend and AVM survivor Dom at a super fun painting party hosted by Maria Di Donato.

Visit our Grassroots Events page to learn more about the Dom's adventure!

 

 

 

AVM Beach Walk

On Saturday, August 24, 2013, AVM and aneurysm survivors, their caregivers, and community members came together at the AVM Beach Walk to honor Domenico Howard and other survivors and walk together on the beach in beautiful Ocean Gate, New Jersey.

Visit our Grassroots Events page to learn more about the Muir Woods Walk!

  

 

 Brainbows have become a runaway hit!

Lindsey Troop began designing hairbows and headbands to benefit TAAF after having surgery to remove an AVM. She's now raised thousands and sales are still going strong! To learn more or to purchase a Brainbow please visit her site at http://www.facebook.com/LindseysBrainbows

 

 

 

Welcome!

Aneurysm and arteriovenous malformation (AVM) are different types of vascular malformation that can affect the brain. These diseases often share common symptoms and recovery challenges. Our website is intended to help you learn about each disease, and provide information on support resources and recovery. 

This site only deals with intracranial (found in the cranium or brain) aneurysm or AVM. However aneurysms and AVMs can develop anywhere there are arteries in the body.

The views expressed by TAAF are not necessarily the views of our sponsors. Additionally, while we strive to provide relevant and helpful information to help educate patients, caregivers, their families and friends, and the general public, the information contained in this website is for informational purposes only. It is crucial that care and treatment decisions for any medical condition be made in consultation with a doctor or other qualified medical professional. 

We welcome feedback on the website and encourage you to let us know how we can improve. To learn more about The Aneurysm and AVM Foundation (TAAF) please visit the About Us section. To make a contribution to support the efforts of TAAF please visit the Donation section.


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MALFORMATION

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